NEW CASTLE —
There is no cure for EDS and there is no effective treatment strategies.
“Just anti-inflammatories and pain medication,” Brown noted. “Surgery isn’t an option until he’s older. At that point, they’ll replace his knees, hips or whatever is needed. He could eventually end up in a wheelchair. They just don’t know.”
Brown and Paul Rosta divorced and Brown eventually moved her children — sons Dalton and Kyler as well as daughters Paige and Hayden — to Florence to better combat the consistent pain her son was feeling.
Dalton has since moved back to Pennsylvania to live with his father and is a standout football player and wrestler at Laurel High.
“The drier climate would be beneficial to Kyler rather than be here with the extreme cold like we get some days,” Paul said. “I know with the moisture and the dampness you do start to feel it when it hits a certain temperature.”
KYLER THE ATHLETE
Kyler showcased an unnatural athletic ability from Day 1, winning a Pennsylvania state wrestling title before turning 10.
“From the time he was born, Kyler was real athletic and real flexible,” his dad said. “We knew he was something special. He’d do crazy stuff like jump off the couch, land on his butt and laugh. That’s something that would hurt any other kid.”
Kyler had a pretty successful first wrestling season, winning a handful of tournaments before capturing a Pennsylvania Junior Olympic championship in the freestyle as an 8-year-old in his second year of wrestling. He also finished in the Top 20 in a national tournament in Columbus, Ohio, that year.
“We started him in wrestling at a young age,” Paul said. “He’s always had that athletic ability and the flexibility was always there. That first season, he won some tournaments and was doing really well. There were over 100 kids in his bracket at that tournament in Columbus, so he did really well.”
Kyler continued to wrestle after moving to Arizona and eventually earned a place in the national youth wrestling rankings.
“He was a fantastic wrestler,” Brown said. “At 7 years old, he was very dedicated. He was doing push-ups and whatever else he could do to get better.
“Everything he’s tried, he’s been pretty good at. He’s an exceptional athlete. I have some athletic kids and he’s probably my best athlete. He’s literally that good.”
Kyler turned his illness into an advantage on the wrestling mats.
“It was like I had an advantage in wrestling,” he said. “I was very flexible and was double-jointed. If I was in a bad position, I could slip out of it without injuring myself. At the time, it didn’t hurt me, but as I got older, it started to hurt doing stuff like that.”